Resources

Families come from near and far to UCSF Medical Center for a bone marrow transplant. There are many resources available to assist families during this time. The social worker is available to answer any questions about resources and to help assist in accessing them. The bone marrow transplant team strives to make the bone marrow transplant process as easy possible for families. Listed below are some organizations and resources that may be helpful to you depending upon your situation. For information on places to stay, eat and exercise while at UCSF see the page on Housing and Food.

• American Brain Tumor Association
  1-800-886-2282
  www.abta.org
  
  
• American Cancer Society
  1-800-227-2545
  www.cancer.org
  
  
• Aplastic Anemia Foundation of America
  1-800-747-2820
  www.aplastic.org
  
  
• Blood and Marrow Transplant Information Network (BMT InfoNet)
  (publications, emotional support, and links to other organizations; for patients and families)
  1-888-597-7674
  www.bmtinfonet.org
  
  
• Blood and Marrow Transplant Newsletter
  1-847-433-3313 / 1-888-597-7674
  www.bmtnews.org
  
  
• The Bone Marrow Foundation
  1-800-365-1336
  www.bonemarrow.org
  
  
• CancerCare, Inc.
  1-212-302-2400
  CancerCare Counseling Line
  1-800-813-HOPE (4673)
  
  
• Candlelighters Childhood Cancer Foundation
  1-800-366-2223
  www.candlelighters.org
  
  
• Coping Magazine
  1-615-790-2400
  
  
• Fanconi's Anemia Research Fund, Inc.
  1-541-687-4658
  www.fanconi.org
  
  
• Histiocytosis Association of America
  1-800-548-2758
  
  
• Immune Deficiency Foundation
  1-800-296-4433
  www.primaryimmune.org
  
  
• Kids Cancer Network
  (has FUNLETTERS, an activities letter for kids and families living with cancer)
  1-805-693-1017
  www.kidscancernetwork.org
  
  
• Leukemia and Lymphoma Society
  1-800-955-4572
  1-212-573-8484
  www.leukemia-lymphoma.org
  
  
• MPS Society
  1-610-942-0100
  www.mpssociety.org
  
  
• Make-A-Wish Foundation
  1-800-722-9474
  www.wish.org
  
  
• National Bone Marrow Transplant Link
  1-800-546-5268
  
  
• National Brain Tumor Foundation
  1-800-934-CURE (2873)
  www.braintumor.org
  
  
• National Children's Cancer Society
  1-800-5-FAMILY
  www.children-cancer.com
  
  
• National Marrow Donor Program
  1-800-627-7692
  www.marrow.org
  
  
• National Organization for Rare Disorders (NORD)
  1-800-999-NORD (6673)
  www.rarediseases.org
  
  
• The Okizu Foundation (camps for children w/ cancer & their families)
  1-415-382-9083
  www.okizu.org
  
  
• The Robert Louie Support Group (support groups for children w/ cancer & their families)
  1-415-775-5921